Health behaviours reported by adults with congenital heart disease across 15 countries.
Identifieur interne : 000192 ( Main/Exploration ); précédent : 000191; suivant : 000193Health behaviours reported by adults with congenital heart disease across 15 countries.
Auteurs : Christina E. Holbein [États-Unis] ; James Peugh [États-Unis] ; Gruschen R. Veldtman [Arabie saoudite] ; Silke Apers [Belgique] ; Koen Luyckx [Belgique, Afrique du Sud] ; Adrienne H. Kovacs [Canada, États-Unis] ; Corina Thomet [Suisse] ; Werner Budts [Belgique] ; Junko Enomoto [Japon] ; Maayke A. Sluman [Pays-Bas] ; Chun-Wei Lu ; Jamie L. Jackson [États-Unis] ; Paul Khairy [Canada] ; Stephen C. Cook [États-Unis] ; Shanthi Chidambarathanu [Inde] ; Luis Alday [Argentine] ; Katrine Eriksen [Norvège] ; Mikael Dellborg [Suède] ; Malin Berghammer [Suède] ; Bengt Johansson [Suède] ; Andrew S. Mackie [Canada] ; Samuel Menahem [Australie] ; Maryanne Caruana [Malte] ; Alexandra Soufi [France] ; Susan M. Fernandes [États-Unis] ; Kamila White [États-Unis] ; Edward Callus [Italie] ; Shelby Kutty [États-Unis] ; Philip Moons [Belgique, Suède, Afrique du Sud]Source :
- European journal of preventive cardiology [ 2047-4881 ] ; 2020.
Abstract
BACKGROUND
Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.
DESIGN
This was a cross-sectional observational study.
METHODS
Adults with congenital heart disease (
RESULTS
Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status.
CONCLUSIONS
Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.
DOI: 10.1177/2047487319876231
PubMed: 31529991
Affiliations:
- Afrique du Sud, Arabie saoudite, Argentine, Australie, Belgique, Canada, France, Inde, Italie, Japon, Malte, Norvège, Pays-Bas, Suisse, Suède, États-Unis
- Hollande-Septentrionale, Ontario
- Amsterdam, Toronto
- Université d'Amsterdam, Université de Toronto
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Holbein</name><affiliation wicri:level="1"><nlm:affiliation>Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia</wicri:regionArea><wicri:noRegion>Children's Hospital of Philadelphia</wicri:noRegion></affiliation></author><author><name sortKey="Peugh, James" sort="Peugh, James" uniqKey="Peugh J" first="James" last="Peugh">James Peugh</name><affiliation wicri:level="1"><nlm:affiliation>Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center</wicri:regionArea><wicri:noRegion>Cincinnati Children's Hospital Medical Center</wicri:noRegion></affiliation></author><author><name sortKey="Veldtman, Gruschen R" sort="Veldtman, Gruschen R" uniqKey="Veldtman G" first="Gruschen R" last="Veldtman">Gruschen R. 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Kovacs</name><affiliation wicri:level="4"><nlm:affiliation>Peter Munk Cardiac Center, University of Toronto, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Peter Munk Cardiac Center, University of Toronto</wicri:regionArea><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName><orgName type="university">Université de Toronto</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Knight Cardiovascular Institute, Oregon Health and Science University, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Knight Cardiovascular Institute, Oregon Health and Science University</wicri:regionArea><wicri:noRegion>Oregon Health and Science University</wicri:noRegion></affiliation></author><author><name sortKey="Thomet, Corina" sort="Thomet, Corina" uniqKey="Thomet C" first="Corina" last="Thomet">Corina Thomet</name><affiliation wicri:level="1"><nlm:affiliation>Center for Congenital Heart Disease, Inselspital - Bern University Hospital, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Center for Congenital Heart Disease, Inselspital - Bern University Hospital</wicri:regionArea><wicri:noRegion>Inselspital - Bern University Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Budts, Werner" sort="Budts, Werner" uniqKey="Budts W" first="Werner" last="Budts">Werner Budts</name><affiliation wicri:level="1"><nlm:affiliation>Division of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Division of Congenital and Structural Cardiology, University Hospitals Leuven</wicri:regionArea><wicri:noRegion>University Hospitals Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Cardiovascular Sciences, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation></author><author><name sortKey="Enomoto, Junko" sort="Enomoto, Junko" uniqKey="Enomoto J" first="Junko" last="Enomoto">Junko Enomoto</name><affiliation wicri:level="1"><nlm:affiliation>Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Japan.</nlm:affiliation><country xml:lang="fr">Japon</country><wicri:regionArea>Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center</wicri:regionArea><wicri:noRegion>Chiba Cardiovascular Center</wicri:noRegion></affiliation></author><author><name sortKey="Sluman, Maayke A" sort="Sluman, Maayke A" uniqKey="Sluman M" first="Maayke A" last="Sluman">Maayke A. Sluman</name><affiliation wicri:level="4"><nlm:affiliation>Coronel Institute of Occupational Health, University of Amsterdam, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Coronel Institute of Occupational Health, University of Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region>Hollande-Septentrionale</region></placeName><orgName type="university">Université d'Amsterdam</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiology, Jeroen Bosch Hospital, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Department of Cardiology, Jeroen Bosch Hospital</wicri:regionArea><wicri:noRegion>Jeroen Bosch Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Lu, Chun Wei" sort="Lu, Chun Wei" uniqKey="Lu C" first="Chun-Wei" last="Lu">Chun-Wei Lu</name><affiliation><nlm:affiliation>Adult Congenital Heart Center, National Taiwan University Children's Hospital.</nlm:affiliation><wicri:noCountry code="subField">National Taiwan University Children's Hospital</wicri:noCountry></affiliation></author><author><name sortKey="Jackson, Jamie L" sort="Jackson, Jamie L" uniqKey="Jackson J" first="Jamie L" last="Jackson">Jamie L. Jackson</name><affiliation wicri:level="1"><nlm:affiliation>Center for Biobehavioral Health, Nationwide Children's Hospital, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Center for Biobehavioral Health, Nationwide Children's Hospital</wicri:regionArea><wicri:noRegion>Nationwide Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Khairy, Paul" sort="Khairy, Paul" uniqKey="Khairy P" first="Paul" last="Khairy">Paul Khairy</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Center, Université de Montréal, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Adult Congenital Heart Center, Université de Montréal</wicri:regionArea><wicri:noRegion>Université de Montréal</wicri:noRegion></affiliation></author><author><name sortKey="Cook, Stephen C" sort="Cook, Stephen C" uniqKey="Cook S" first="Stephen C" last="Cook">Stephen C. Cook</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital</wicri:regionArea><wicri:noRegion>Helen DeVos Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Chidambarathanu, Shanthi" sort="Chidambarathanu, Shanthi" uniqKey="Chidambarathanu S" first="Shanthi" last="Chidambarathanu">Shanthi Chidambarathanu</name><affiliation wicri:level="1"><nlm:affiliation>Pediatric Cardiology, Frontier Lifeline Hospital, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Pediatric Cardiology, Frontier Lifeline Hospital</wicri:regionArea><wicri:noRegion>Frontier Lifeline Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Alday, Luis" sort="Alday, Luis" uniqKey="Alday L" first="Luis" last="Alday">Luis Alday</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Hospital de Niños, Argentina.</nlm:affiliation><country xml:lang="fr">Argentine</country><wicri:regionArea>Division of Cardiology, Hospital de Niños</wicri:regionArea><wicri:noRegion>Hospital de Niños</wicri:noRegion></affiliation></author><author><name sortKey="Eriksen, Katrine" sort="Eriksen, Katrine" uniqKey="Eriksen K" first="Katrine" last="Eriksen">Katrine Eriksen</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet</wicri:regionArea><wicri:noRegion>Oslo University Hospital - Rikshospitalet</wicri:noRegion></affiliation></author><author><name sortKey="Dellborg, Mikael" sort="Dellborg, Mikael" uniqKey="Dellborg M" first="Mikael" last="Dellborg">Mikael Dellborg</name><affiliation wicri:level="1"><nlm:affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Centre for Person-Centred Care (GPCC), University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra</wicri:regionArea><wicri:noRegion>Sahlgrenska University Hospital/Östra</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg</wicri:regionArea><wicri:noRegion>The Sahlgrenska Academy at University of Gothenburg</wicri:noRegion></affiliation></author><author><name sortKey="Berghammer, Malin" sort="Berghammer, Malin" uniqKey="Berghammer M" first="Malin" last="Berghammer">Malin Berghammer</name><affiliation wicri:level="1"><nlm:affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Centre for Person-Centred Care (GPCC), University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Health Sciences, University West, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Health Sciences, University West</wicri:regionArea><wicri:noRegion>University West</wicri:noRegion></affiliation></author><author><name sortKey="Johansson, Bengt" sort="Johansson, Bengt" uniqKey="Johansson B" first="Bengt" last="Johansson">Bengt Johansson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Clinical Medicine, Umeå University, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Public Health and Clinical Medicine, Umeå University</wicri:regionArea><wicri:noRegion>Umeå University</wicri:noRegion></affiliation></author><author><name sortKey="Mackie, Andrew S" sort="Mackie, Andrew S" uniqKey="Mackie A" first="Andrew S" last="Mackie">Andrew S. Mackie</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Stollery Children's Hospital, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Cardiology, Stollery Children's Hospital</wicri:regionArea><wicri:noRegion>Stollery Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Menahem, Samuel" sort="Menahem, Samuel" uniqKey="Menahem S" first="Samuel" last="Menahem">Samuel Menahem</name><affiliation wicri:level="1"><nlm:affiliation>Monash Heart, Monash University, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Monash Heart, Monash University</wicri:regionArea><wicri:noRegion>Monash University</wicri:noRegion></affiliation></author><author><name sortKey="Caruana, Maryanne" sort="Caruana, Maryanne" uniqKey="Caruana M" first="Maryanne" last="Caruana">Maryanne Caruana</name><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiology, Mater Dei Hospital, Malta.</nlm:affiliation><country xml:lang="fr">Malte</country><wicri:regionArea>Department of Cardiology, Mater Dei Hospital</wicri:regionArea><wicri:noRegion>Mater Dei Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Soufi, Alexandra" sort="Soufi, Alexandra" uniqKey="Soufi A" first="Alexandra" last="Soufi">Alexandra Soufi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Congenital Heart Disease, Louis Pradel Hospital, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Congenital Heart Disease, Louis Pradel Hospital</wicri:regionArea><wicri:noRegion>Louis Pradel Hospital</wicri:noRegion><wicri:noRegion>Louis Pradel Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Fernandes, Susan M" sort="Fernandes, Susan M" uniqKey="Fernandes S" first="Susan M" last="Fernandes">Susan M. Fernandes</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care</wicri:regionArea><wicri:noRegion>Lucile Packard Children's Hospital and Stanford Health Care</wicri:noRegion></affiliation></author><author><name sortKey="White, Kamila" sort="White, Kamila" uniqKey="White K" first="Kamila" last="White">Kamila White</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Washington University, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, Washington University</wicri:regionArea><wicri:noRegion>Washington University</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Barnes Jewish Heart and Vascular Center, University of Missouri, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Barnes Jewish Heart and Vascular Center, University of Missouri</wicri:regionArea><wicri:noRegion>University of Missouri</wicri:noRegion></affiliation></author><author><name sortKey="Callus, Edward" sort="Callus, Edward" uniqKey="Callus E" first="Edward" last="Callus">Edward Callus</name><affiliation wicri:level="1"><nlm:affiliation>Clinical Psychology Service, IRCCS Policlinico San Donato, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Clinical Psychology Service, IRCCS Policlinico San Donato</wicri:regionArea><wicri:noRegion>IRCCS Policlinico San Donato</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Biomedical Sciences for Health, Università degli Studi di Milano, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Biomedical Sciences for Health, Università degli Studi di Milano</wicri:regionArea><wicri:noRegion>Università degli Studi di Milano</wicri:noRegion></affiliation></author><author><name sortKey="Kutty, Shelby" sort="Kutty, Shelby" uniqKey="Kutty S" first="Shelby" last="Kutty">Shelby Kutty</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, University of Nebraska Medical Center, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, University of Nebraska Medical Center</wicri:regionArea><wicri:noRegion>University of Nebraska Medical Center</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Taussig Heart Center, Johns Hopkins School of Medicine, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Taussig Heart Center, Johns Hopkins School of Medicine</wicri:regionArea><wicri:noRegion>Johns Hopkins School of Medicine</wicri:noRegion></affiliation></author><author><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Public Health and Primary Care, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Institute of Health and Care Sciences, University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Institute of Health and Care Sciences, University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics and Child Health, University of Cape Town, South Africa.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Paediatrics and Child Health, University of Cape Town</wicri:regionArea><wicri:noRegion>University of Cape Town</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PubMed</idno><date when="2020">2020</date><idno type="RBID">pubmed:31529991</idno><idno type="pmid">31529991</idno><idno type="doi">10.1177/2047487319876231</idno><idno type="wicri:Area/Main/Corpus">000354</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Corpus" wicri:corpus="PubMed">000354</idno><idno type="wicri:Area/Main/Curation">000354</idno><idno type="wicri:explorRef" wicri:stream="Main" wicri:step="Curation">000354</idno><idno type="wicri:Area/Main/Exploration">000354</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en">Health behaviours reported by adults with congenital heart disease across 15 countries.</title><author><name sortKey="Holbein, Christina E" sort="Holbein, Christina E" uniqKey="Holbein C" first="Christina E" last="Holbein">Christina E. Holbein</name><affiliation wicri:level="1"><nlm:affiliation>Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia</wicri:regionArea><wicri:noRegion>Children's Hospital of Philadelphia</wicri:noRegion></affiliation></author><author><name sortKey="Peugh, James" sort="Peugh, James" uniqKey="Peugh J" first="James" last="Peugh">James Peugh</name><affiliation wicri:level="1"><nlm:affiliation>Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center</wicri:regionArea><wicri:noRegion>Cincinnati Children's Hospital Medical Center</wicri:noRegion></affiliation></author><author><name sortKey="Veldtman, Gruschen R" sort="Veldtman, Gruschen R" uniqKey="Veldtman G" first="Gruschen R" last="Veldtman">Gruschen R. Veldtman</name><affiliation wicri:level="1"><nlm:affiliation>Heart Centre, King Faisal Specialist Hospital and Research Centre, Saudi Arabia.</nlm:affiliation><country xml:lang="fr">Arabie saoudite</country><wicri:regionArea>Heart Centre, King Faisal Specialist Hospital and Research Centre</wicri:regionArea><wicri:noRegion>King Faisal Specialist Hospital and Research Centre</wicri:noRegion></affiliation></author><author><name sortKey="Apers, Silke" sort="Apers, Silke" uniqKey="Apers S" first="Silke" last="Apers">Silke Apers</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Public Health and Primary Care, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation></author><author><name sortKey="Luyckx, Koen" sort="Luyckx, Koen" uniqKey="Luyckx K" first="Koen" last="Luyckx">Koen Luyckx</name><affiliation wicri:level="1"><nlm:affiliation>School Psychology and Development in Context, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>School Psychology and Development in Context, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>UNIBS, University of the Free State, South Africa.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>UNIBS, University of the Free State</wicri:regionArea><wicri:noRegion>University of the Free State</wicri:noRegion></affiliation></author><author><name sortKey="Kovacs, Adrienne H" sort="Kovacs, Adrienne H" uniqKey="Kovacs A" first="Adrienne H" last="Kovacs">Adrienne H. Kovacs</name><affiliation wicri:level="4"><nlm:affiliation>Peter Munk Cardiac Center, University of Toronto, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Peter Munk Cardiac Center, University of Toronto</wicri:regionArea><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName><orgName type="university">Université de Toronto</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Knight Cardiovascular Institute, Oregon Health and Science University, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Knight Cardiovascular Institute, Oregon Health and Science University</wicri:regionArea><wicri:noRegion>Oregon Health and Science University</wicri:noRegion></affiliation></author><author><name sortKey="Thomet, Corina" sort="Thomet, Corina" uniqKey="Thomet C" first="Corina" last="Thomet">Corina Thomet</name><affiliation wicri:level="1"><nlm:affiliation>Center for Congenital Heart Disease, Inselspital - Bern University Hospital, Switzerland.</nlm:affiliation><country xml:lang="fr">Suisse</country><wicri:regionArea>Center for Congenital Heart Disease, Inselspital - Bern University Hospital</wicri:regionArea><wicri:noRegion>Inselspital - Bern University Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Budts, Werner" sort="Budts, Werner" uniqKey="Budts W" first="Werner" last="Budts">Werner Budts</name><affiliation wicri:level="1"><nlm:affiliation>Division of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Division of Congenital and Structural Cardiology, University Hospitals Leuven</wicri:regionArea><wicri:noRegion>University Hospitals Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Cardiovascular Sciences, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation></author><author><name sortKey="Enomoto, Junko" sort="Enomoto, Junko" uniqKey="Enomoto J" first="Junko" last="Enomoto">Junko Enomoto</name><affiliation wicri:level="1"><nlm:affiliation>Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Japan.</nlm:affiliation><country xml:lang="fr">Japon</country><wicri:regionArea>Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center</wicri:regionArea><wicri:noRegion>Chiba Cardiovascular Center</wicri:noRegion></affiliation></author><author><name sortKey="Sluman, Maayke A" sort="Sluman, Maayke A" uniqKey="Sluman M" first="Maayke A" last="Sluman">Maayke A. Sluman</name><affiliation wicri:level="4"><nlm:affiliation>Coronel Institute of Occupational Health, University of Amsterdam, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Coronel Institute of Occupational Health, University of Amsterdam</wicri:regionArea><placeName><settlement type="city">Amsterdam</settlement><region>Hollande-Septentrionale</region></placeName><orgName type="university">Université d'Amsterdam</orgName></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiology, Jeroen Bosch Hospital, the Netherlands.</nlm:affiliation><country xml:lang="fr" wicri:curation="lc">Pays-Bas</country><wicri:regionArea>Department of Cardiology, Jeroen Bosch Hospital</wicri:regionArea><wicri:noRegion>Jeroen Bosch Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Lu, Chun Wei" sort="Lu, Chun Wei" uniqKey="Lu C" first="Chun-Wei" last="Lu">Chun-Wei Lu</name><affiliation><nlm:affiliation>Adult Congenital Heart Center, National Taiwan University Children's Hospital.</nlm:affiliation><wicri:noCountry code="subField">National Taiwan University Children's Hospital</wicri:noCountry></affiliation></author><author><name sortKey="Jackson, Jamie L" sort="Jackson, Jamie L" uniqKey="Jackson J" first="Jamie L" last="Jackson">Jamie L. Jackson</name><affiliation wicri:level="1"><nlm:affiliation>Center for Biobehavioral Health, Nationwide Children's Hospital, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Center for Biobehavioral Health, Nationwide Children's Hospital</wicri:regionArea><wicri:noRegion>Nationwide Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Khairy, Paul" sort="Khairy, Paul" uniqKey="Khairy P" first="Paul" last="Khairy">Paul Khairy</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Center, Université de Montréal, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Adult Congenital Heart Center, Université de Montréal</wicri:regionArea><wicri:noRegion>Université de Montréal</wicri:noRegion></affiliation></author><author><name sortKey="Cook, Stephen C" sort="Cook, Stephen C" uniqKey="Cook S" first="Stephen C" last="Cook">Stephen C. Cook</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital</wicri:regionArea><wicri:noRegion>Helen DeVos Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Chidambarathanu, Shanthi" sort="Chidambarathanu, Shanthi" uniqKey="Chidambarathanu S" first="Shanthi" last="Chidambarathanu">Shanthi Chidambarathanu</name><affiliation wicri:level="1"><nlm:affiliation>Pediatric Cardiology, Frontier Lifeline Hospital, India.</nlm:affiliation><country xml:lang="fr">Inde</country><wicri:regionArea>Pediatric Cardiology, Frontier Lifeline Hospital</wicri:regionArea><wicri:noRegion>Frontier Lifeline Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Alday, Luis" sort="Alday, Luis" uniqKey="Alday L" first="Luis" last="Alday">Luis Alday</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Hospital de Niños, Argentina.</nlm:affiliation><country xml:lang="fr">Argentine</country><wicri:regionArea>Division of Cardiology, Hospital de Niños</wicri:regionArea><wicri:noRegion>Hospital de Niños</wicri:noRegion></affiliation></author><author><name sortKey="Eriksen, Katrine" sort="Eriksen, Katrine" uniqKey="Eriksen K" first="Katrine" last="Eriksen">Katrine Eriksen</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Norway.</nlm:affiliation><country xml:lang="fr">Norvège</country><wicri:regionArea>Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet</wicri:regionArea><wicri:noRegion>Oslo University Hospital - Rikshospitalet</wicri:noRegion></affiliation></author><author><name sortKey="Dellborg, Mikael" sort="Dellborg, Mikael" uniqKey="Dellborg M" first="Mikael" last="Dellborg">Mikael Dellborg</name><affiliation wicri:level="1"><nlm:affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Centre for Person-Centred Care (GPCC), University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra</wicri:regionArea><wicri:noRegion>Sahlgrenska University Hospital/Östra</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg</wicri:regionArea><wicri:noRegion>The Sahlgrenska Academy at University of Gothenburg</wicri:noRegion></affiliation></author><author><name sortKey="Berghammer, Malin" sort="Berghammer, Malin" uniqKey="Berghammer M" first="Malin" last="Berghammer">Malin Berghammer</name><affiliation wicri:level="1"><nlm:affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Centre for Person-Centred Care (GPCC), University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Health Sciences, University West, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Health Sciences, University West</wicri:regionArea><wicri:noRegion>University West</wicri:noRegion></affiliation></author><author><name sortKey="Johansson, Bengt" sort="Johansson, Bengt" uniqKey="Johansson B" first="Bengt" last="Johansson">Bengt Johansson</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Clinical Medicine, Umeå University, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Department of Public Health and Clinical Medicine, Umeå University</wicri:regionArea><wicri:noRegion>Umeå University</wicri:noRegion></affiliation></author><author><name sortKey="Mackie, Andrew S" sort="Mackie, Andrew S" uniqKey="Mackie A" first="Andrew S" last="Mackie">Andrew S. Mackie</name><affiliation wicri:level="1"><nlm:affiliation>Division of Cardiology, Stollery Children's Hospital, Canada.</nlm:affiliation><country xml:lang="fr">Canada</country><wicri:regionArea>Division of Cardiology, Stollery Children's Hospital</wicri:regionArea><wicri:noRegion>Stollery Children's Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Menahem, Samuel" sort="Menahem, Samuel" uniqKey="Menahem S" first="Samuel" last="Menahem">Samuel Menahem</name><affiliation wicri:level="1"><nlm:affiliation>Monash Heart, Monash University, Australia.</nlm:affiliation><country xml:lang="fr">Australie</country><wicri:regionArea>Monash Heart, Monash University</wicri:regionArea><wicri:noRegion>Monash University</wicri:noRegion></affiliation></author><author><name sortKey="Caruana, Maryanne" sort="Caruana, Maryanne" uniqKey="Caruana M" first="Maryanne" last="Caruana">Maryanne Caruana</name><affiliation wicri:level="1"><nlm:affiliation>Department of Cardiology, Mater Dei Hospital, Malta.</nlm:affiliation><country xml:lang="fr">Malte</country><wicri:regionArea>Department of Cardiology, Mater Dei Hospital</wicri:regionArea><wicri:noRegion>Mater Dei Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Soufi, Alexandra" sort="Soufi, Alexandra" uniqKey="Soufi A" first="Alexandra" last="Soufi">Alexandra Soufi</name><affiliation wicri:level="1"><nlm:affiliation>Department of Congenital Heart Disease, Louis Pradel Hospital, France.</nlm:affiliation><country xml:lang="fr">France</country><wicri:regionArea>Department of Congenital Heart Disease, Louis Pradel Hospital</wicri:regionArea><wicri:noRegion>Louis Pradel Hospital</wicri:noRegion><wicri:noRegion>Louis Pradel Hospital</wicri:noRegion></affiliation></author><author><name sortKey="Fernandes, Susan M" sort="Fernandes, Susan M" uniqKey="Fernandes S" first="Susan M" last="Fernandes">Susan M. Fernandes</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care</wicri:regionArea><wicri:noRegion>Lucile Packard Children's Hospital and Stanford Health Care</wicri:noRegion></affiliation></author><author><name sortKey="White, Kamila" sort="White, Kamila" uniqKey="White K" first="Kamila" last="White">Kamila White</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, Washington University, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, Washington University</wicri:regionArea><wicri:noRegion>Washington University</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Barnes Jewish Heart and Vascular Center, University of Missouri, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Barnes Jewish Heart and Vascular Center, University of Missouri</wicri:regionArea><wicri:noRegion>University of Missouri</wicri:noRegion></affiliation></author><author><name sortKey="Callus, Edward" sort="Callus, Edward" uniqKey="Callus E" first="Edward" last="Callus">Edward Callus</name><affiliation wicri:level="1"><nlm:affiliation>Clinical Psychology Service, IRCCS Policlinico San Donato, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Clinical Psychology Service, IRCCS Policlinico San Donato</wicri:regionArea><wicri:noRegion>IRCCS Policlinico San Donato</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Biomedical Sciences for Health, Università degli Studi di Milano, Italy.</nlm:affiliation><country xml:lang="fr">Italie</country><wicri:regionArea>Department of Biomedical Sciences for Health, Università degli Studi di Milano</wicri:regionArea><wicri:noRegion>Università degli Studi di Milano</wicri:noRegion></affiliation></author><author><name sortKey="Kutty, Shelby" sort="Kutty, Shelby" uniqKey="Kutty S" first="Shelby" last="Kutty">Shelby Kutty</name><affiliation wicri:level="1"><nlm:affiliation>Adult Congenital Heart Disease Center, University of Nebraska Medical Center, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Adult Congenital Heart Disease Center, University of Nebraska Medical Center</wicri:regionArea><wicri:noRegion>University of Nebraska Medical Center</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Taussig Heart Center, Johns Hopkins School of Medicine, USA.</nlm:affiliation><country xml:lang="fr">États-Unis</country><wicri:regionArea>Taussig Heart Center, Johns Hopkins School of Medicine</wicri:regionArea><wicri:noRegion>Johns Hopkins School of Medicine</wicri:noRegion></affiliation></author><author><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name><affiliation wicri:level="1"><nlm:affiliation>Department of Public Health and Primary Care, KU Leuven - University of Leuven, Belgium.</nlm:affiliation><country xml:lang="fr">Belgique</country><wicri:regionArea>Department of Public Health and Primary Care, KU Leuven - University of Leuven</wicri:regionArea><wicri:noRegion>KU Leuven - University of Leuven</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Institute of Health and Care Sciences, University of Gothenburg, Sweden.</nlm:affiliation><country xml:lang="fr">Suède</country><wicri:regionArea>Institute of Health and Care Sciences, University of Gothenburg</wicri:regionArea><wicri:noRegion>University of Gothenburg</wicri:noRegion></affiliation><affiliation wicri:level="1"><nlm:affiliation>Department of Paediatrics and Child Health, University of Cape Town, South Africa.</nlm:affiliation><country xml:lang="fr">Afrique du Sud</country><wicri:regionArea>Department of Paediatrics and Child Health, University of Cape Town</wicri:regionArea><wicri:noRegion>University of Cape Town</wicri:noRegion></affiliation></author></analytic><series><title level="j">European journal of preventive cardiology</title><idno type="eISSN">2047-4881</idno><imprint><date when="2020" type="published">2020</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b></p><p>Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.</p></div><div type="abstract" xml:lang="en"><p><b>DESIGN</b></p><p>This was a cross-sectional observational study.</p></div><div type="abstract" xml:lang="en"><p><b>METHODS</b></p><p>Adults with congenital heart disease (</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b></p><p>Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.</p></div></front></TEI><pubmed><MedlineCitation Status="In-Process" Owner="NLM"><PMID Version="1">31529991</PMID><DateRevised><Year>2021</Year><Month>01</Month><Day>22</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">2047-4881</ISSN><JournalIssue CitedMedium="Internet"><Volume>27</Volume><Issue>10</Issue><PubDate><Year>2020</Year><Month>07</Month></PubDate></JournalIssue><Title>European journal of preventive cardiology</Title><ISOAbbreviation>Eur J Prev Cardiol</ISOAbbreviation></Journal><ArticleTitle>Health behaviours reported by adults with congenital heart disease across 15 countries.</ArticleTitle><Pagination><MedlinePgn>1077-1087</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1177/2047487319876231</ELocationID><Abstract><AbstractText Label="BACKGROUND">Health behaviours are essential to maintain optimal health and reduce the risk of cardiovascular complications in adults with congenital heart disease. This study aimed to describe health behaviours in adults with congenital heart disease in 15 countries and to identify patient characteristics associated with optimal health behaviours in the international sample.</AbstractText><AbstractText Label="DESIGN">This was a cross-sectional observational study.</AbstractText><AbstractText Label="METHODS">Adults with congenital heart disease (<i>n</i> = 4028, median age = 32 years, interquartile range 25-42 years) completed self-report measures as part of the Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS). Participants reported on seven health behaviours using the Health Behaviors Scale-Congenital Heart Disease. Demographic and medical characteristics were assessed via medical chart review and self-report. Multivariate path analyses with inverse sampling weights were used to investigate study aims.</AbstractText><AbstractText Label="RESULTS">Health behaviour rates for the full sample were 10% binge drinking, 12% cigarette smoking, 6% recreational drug use, 72% annual dental visit, 69% twice daily tooth brushing, 27% daily dental flossing and 43% sport participation. Pairwise comparisons indicated that rates differed between countries. Rates of substance use behaviours were higher in younger, male participants. Optimal dental health behaviours were more common among older, female participants with higher educational attainment while sports participation was more frequent among participants who were younger, male, married, employed/students, with higher educational attainment, less complex anatomical defects and better functional status.</AbstractText><AbstractText Label="CONCLUSIONS">Health behaviour rates vary by country. Predictors of health behaviours may reflect larger geographic trends. Our findings have implications for the development and implementation of programmes for the assessment and promotion of optimal health behaviours in adults with congenital heart disease.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Holbein</LastName><ForeName>Christina E</ForeName><Initials>CE</Initials><AffiliationInfo><Affiliation>Department of Child and Adolescent Psychiatry and Behavioral Sciences, Children's Hospital of Philadelphia, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Peugh</LastName><ForeName>James</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Veldtman</LastName><ForeName>Gruschen R</ForeName><Initials>GR</Initials><AffiliationInfo><Affiliation>Heart Centre, King Faisal Specialist Hospital and Research Centre, Saudi Arabia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Apers</LastName><ForeName>Silke</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Department of Public Health and Primary Care, KU Leuven - University of Leuven, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Luyckx</LastName><ForeName>Koen</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>School Psychology and Development in Context, KU Leuven - University of Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>UNIBS, University of the Free State, South Africa.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kovacs</LastName><ForeName>Adrienne H</ForeName><Initials>AH</Initials><AffiliationInfo><Affiliation>Peter Munk Cardiac Center, University of Toronto, Canada.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Knight Cardiovascular Institute, Oregon Health and Science University, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Thomet</LastName><ForeName>Corina</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Center for Congenital Heart Disease, Inselspital - Bern University Hospital, Switzerland.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Budts</LastName><ForeName>Werner</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Division of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Cardiovascular Sciences, KU Leuven - University of Leuven, Belgium.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Enomoto</LastName><ForeName>Junko</ForeName><Initials>J</Initials><AffiliationInfo><Affiliation>Department of Adult Congenital Heart Disease, Chiba Cardiovascular Center, Japan.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Sluman</LastName><ForeName>Maayke A</ForeName><Initials>MA</Initials><AffiliationInfo><Affiliation>Coronel Institute of Occupational Health, University of Amsterdam, the Netherlands.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Cardiology, Jeroen Bosch Hospital, the Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Lu</LastName><ForeName>Chun-Wei</ForeName><Initials>CW</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Center, National Taiwan University Children's Hospital.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Jackson</LastName><ForeName>Jamie L</ForeName><Initials>JL</Initials><AffiliationInfo><Affiliation>Center for Biobehavioral Health, Nationwide Children's Hospital, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Khairy</LastName><ForeName>Paul</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Center, Université de Montréal, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Cook</LastName><ForeName>Stephen C</ForeName><Initials>SC</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Chidambarathanu</LastName><ForeName>Shanthi</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Pediatric Cardiology, Frontier Lifeline Hospital, India.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Alday</LastName><ForeName>Luis</ForeName><Initials>L</Initials><AffiliationInfo><Affiliation>Division of Cardiology, Hospital de Niños, Argentina.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Eriksen</LastName><ForeName>Katrine</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Norway.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Dellborg</LastName><ForeName>Mikael</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Berghammer</LastName><ForeName>Malin</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Health Sciences, University West, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Johansson</LastName><ForeName>Bengt</ForeName><Initials>B</Initials><AffiliationInfo><Affiliation>Department of Public Health and Clinical Medicine, Umeå University, Sweden.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Mackie</LastName><ForeName>Andrew S</ForeName><Initials>AS</Initials><AffiliationInfo><Affiliation>Division of Cardiology, Stollery Children's Hospital, Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Menahem</LastName><ForeName>Samuel</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Monash Heart, Monash University, Australia.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Caruana</LastName><ForeName>Maryanne</ForeName><Initials>M</Initials><AffiliationInfo><Affiliation>Department of Cardiology, Mater Dei Hospital, Malta.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Soufi</LastName><ForeName>Alexandra</ForeName><Initials>A</Initials><AffiliationInfo><Affiliation>Department of Congenital Heart Disease, Louis Pradel Hospital, France.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Fernandes</LastName><ForeName>Susan M</ForeName><Initials>SM</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>White</LastName><ForeName>Kamila</ForeName><Initials>K</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Disease Center, Washington University, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Barnes Jewish Heart and Vascular Center, University of Missouri, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Callus</LastName><ForeName>Edward</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Clinical Psychology Service, IRCCS Policlinico San Donato, Italy.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Biomedical Sciences for Health, Università degli Studi di Milano, Italy.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Kutty</LastName><ForeName>Shelby</ForeName><Initials>S</Initials><AffiliationInfo><Affiliation>Adult Congenital Heart Disease Center, University of Nebraska Medical Center, USA.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Taussig Heart Center, Johns Hopkins School of Medicine, USA.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Moons</LastName><ForeName>Philip</ForeName><Initials>P</Initials><AffiliationInfo><Affiliation>Department of Public Health and Primary Care, KU Leuven - University of Leuven, Belgium.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Institute of Health and Care Sciences, University of Gothenburg, Sweden.</Affiliation></AffiliationInfo><AffiliationInfo><Affiliation>Department of Paediatrics and Child Health, University of Cape Town, South Africa.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><CollectiveName>APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD)</CollectiveName></Author></AuthorList><Language>eng</Language><GrantList CompleteYN="Y"><Grant><GrantID>T32 HD068223</GrantID><Acronym>HD</Acronym><Agency>NICHD NIH HHS</Agency><Country>United States</Country></Grant></GrantList><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D052061">Research Support, N.I.H., Extramural</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2019</Year><Month>09</Month><Day>17</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Eur J Prev Cardiol</MedlineTA><NlmUniqueID>101564430</NlmUniqueID><ISSNLinking>2047-4873</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><CommentsCorrectionsList><CommentsCorrections RefType="CommentIn"><RefSource>Eur J Prev Cardiol. 2020 Jul;27(10):1074-1076</RefSource><PMID Version="1">31480874</PMID></CommentsCorrections></CommentsCorrectionsList><KeywordList Owner="NOTNLM"><Keyword MajorTopicYN="Y">Heart defects</Keyword><Keyword MajorTopicYN="Y">congenital</Keyword><Keyword MajorTopicYN="Y">health behaviour</Keyword><Keyword MajorTopicYN="Y">patient-reported outcome measures</Keyword><Keyword MajorTopicYN="Y">prevention</Keyword><Keyword MajorTopicYN="Y">risk factors</Keyword></KeywordList></MedlineCitation><PubmedData><History><PubMedPubDate PubStatus="pubmed"><Year>2019</Year><Month>9</Month><Day>19</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="medline"><Year>2019</Year><Month>9</Month><Day>19</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate><PubMedPubDate PubStatus="entrez"><Year>2019</Year><Month>9</Month><Day>19</Day><Hour>6</Hour><Minute>0</Minute></PubMedPubDate></History><PublicationStatus>ppublish</PublicationStatus><ArticleIdList><ArticleId IdType="pubmed">31529991</ArticleId><ArticleId IdType="doi">10.1177/2047487319876231</ArticleId></ArticleIdList></PubmedData></pubmed><affiliations><list><country><li>Afrique du Sud</li><li>Arabie saoudite</li><li>Argentine</li><li>Australie</li><li>Belgique</li><li>Canada</li><li>France</li><li>Inde</li><li>Italie</li><li>Japon</li><li>Malte</li><li>Norvège</li><li>Pays-Bas</li><li>Suisse</li><li>Suède</li><li>États-Unis</li></country><region><li>Hollande-Septentrionale</li><li>Ontario</li></region><settlement><li>Amsterdam</li><li>Toronto</li></settlement><orgName><li>Université d'Amsterdam</li><li>Université de Toronto</li></orgName></list><tree><noCountry><name sortKey="Lu, Chun Wei" sort="Lu, Chun Wei" uniqKey="Lu C" first="Chun-Wei" last="Lu">Chun-Wei Lu</name></noCountry><country name="États-Unis"><noRegion><name sortKey="Holbein, Christina E" sort="Holbein, Christina E" uniqKey="Holbein C" first="Christina E" last="Holbein">Christina E. Holbein</name></noRegion><name sortKey="Cook, Stephen C" sort="Cook, Stephen C" uniqKey="Cook S" first="Stephen C" last="Cook">Stephen C. Cook</name><name sortKey="Fernandes, Susan M" sort="Fernandes, Susan M" uniqKey="Fernandes S" first="Susan M" last="Fernandes">Susan M. Fernandes</name><name sortKey="Jackson, Jamie L" sort="Jackson, Jamie L" uniqKey="Jackson J" first="Jamie L" last="Jackson">Jamie L. Jackson</name><name sortKey="Kovacs, Adrienne H" sort="Kovacs, Adrienne H" uniqKey="Kovacs A" first="Adrienne H" last="Kovacs">Adrienne H. Kovacs</name><name sortKey="Kutty, Shelby" sort="Kutty, Shelby" uniqKey="Kutty S" first="Shelby" last="Kutty">Shelby Kutty</name><name sortKey="Kutty, Shelby" sort="Kutty, Shelby" uniqKey="Kutty S" first="Shelby" last="Kutty">Shelby Kutty</name><name sortKey="Peugh, James" sort="Peugh, James" uniqKey="Peugh J" first="James" last="Peugh">James Peugh</name><name sortKey="White, Kamila" sort="White, Kamila" uniqKey="White K" first="Kamila" last="White">Kamila White</name><name sortKey="White, Kamila" sort="White, Kamila" uniqKey="White K" first="Kamila" last="White">Kamila White</name></country><country name="Arabie saoudite"><noRegion><name sortKey="Veldtman, Gruschen R" sort="Veldtman, Gruschen R" uniqKey="Veldtman G" first="Gruschen R" last="Veldtman">Gruschen R. 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Sluman</name></country><country name="Inde"><noRegion><name sortKey="Chidambarathanu, Shanthi" sort="Chidambarathanu, Shanthi" uniqKey="Chidambarathanu S" first="Shanthi" last="Chidambarathanu">Shanthi Chidambarathanu</name></noRegion></country><country name="Argentine"><noRegion><name sortKey="Alday, Luis" sort="Alday, Luis" uniqKey="Alday L" first="Luis" last="Alday">Luis Alday</name></noRegion></country><country name="Norvège"><noRegion><name sortKey="Eriksen, Katrine" sort="Eriksen, Katrine" uniqKey="Eriksen K" first="Katrine" last="Eriksen">Katrine Eriksen</name></noRegion></country><country name="Suède"><noRegion><name sortKey="Dellborg, Mikael" sort="Dellborg, Mikael" uniqKey="Dellborg M" first="Mikael" last="Dellborg">Mikael Dellborg</name></noRegion><name sortKey="Berghammer, Malin" sort="Berghammer, Malin" uniqKey="Berghammer M" first="Malin" last="Berghammer">Malin Berghammer</name><name sortKey="Berghammer, Malin" sort="Berghammer, Malin" uniqKey="Berghammer M" first="Malin" last="Berghammer">Malin Berghammer</name><name sortKey="Dellborg, Mikael" sort="Dellborg, Mikael" uniqKey="Dellborg M" first="Mikael" last="Dellborg">Mikael Dellborg</name><name sortKey="Dellborg, Mikael" sort="Dellborg, Mikael" uniqKey="Dellborg M" first="Mikael" last="Dellborg">Mikael Dellborg</name><name sortKey="Johansson, Bengt" sort="Johansson, Bengt" uniqKey="Johansson B" first="Bengt" last="Johansson">Bengt Johansson</name><name sortKey="Moons, Philip" sort="Moons, Philip" uniqKey="Moons P" first="Philip" last="Moons">Philip Moons</name></country><country name="Australie"><noRegion><name sortKey="Menahem, Samuel" sort="Menahem, Samuel" uniqKey="Menahem S" first="Samuel" last="Menahem">Samuel Menahem</name></noRegion></country><country name="Malte"><noRegion><name sortKey="Caruana, Maryanne" sort="Caruana, Maryanne" uniqKey="Caruana M" first="Maryanne" last="Caruana">Maryanne Caruana</name></noRegion></country><country name="France"><noRegion><name sortKey="Soufi, Alexandra" sort="Soufi, Alexandra" uniqKey="Soufi A" first="Alexandra" last="Soufi">Alexandra Soufi</name></noRegion></country><country name="Italie"><noRegion><name sortKey="Callus, Edward" sort="Callus, Edward" uniqKey="Callus E" first="Edward" last="Callus">Edward Callus</name></noRegion><name sortKey="Callus, Edward" sort="Callus, Edward" uniqKey="Callus E" first="Edward" last="Callus">Edward Callus</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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